“Individuals with Cri du Chat Syndrome are Super Heroes and strive to be the best that they can be despite their limitations” Jen Wong, President 5p- Society
Lakewood, California (PRWEB)
April 30, 2017
During the first full week of May, the 5p- Society of North America, along with support organizations from over 70 countries, are bringing awareness of Cri du Chat Syndrome, also known as 5p- Syndrome, a permanent deletion on the “p” arm of the 5th chromosome.
The 5p- Society’s mission is to maximize the quality of life of an individuals with 5p- and their families. One way to improve the lives of individuals with the syndrome is by creating a Caregivers Guide with current information on diagnosis, therapies, educational goals, transition and adult living. Information for the guide is currently being collected with the hopes of having it completed by the end of 2017. It is also committed to connecting parents to network, vent and share information through their Social Media platforms.
“Families who have felt alone in their journey of raising a child with Cri du Chat Syndrome can now find immediate resources, support and information.” Laura Castillo, Executive Director, 5p- Society. “This was not available to me 29 years ago when my daughter Katie was born.” “Learning about each other’s child, their strengths and weaknesses has become extremely educational and has created new and unique conversations.” “We’d love to see more research done on the various genes affected on the 5th chromosome and the correlation with the characteristics of the syndrome.”
“Individuals with Cri du Chat Syndrome are Super Heroes and strive to be the best that they can be despite their limitations” Jennifer Wong,…